Washington DC – House Energy and Commerce Committee Health Subcommittee Chairman Brett Guthrie (R-Ky.) delivered the following opening remarks before today's Health Subcommittee. markup Among 19 bills to improve the health and well-being of patients and caregivers.
“The legislation we have before us today will help detect, diagnose and treat chronic diseases and health conditions earlier, improve the quality of life for individuals with disabilities and their families, and improve the quality of life for individuals with disabilities and their families. ”, providing additional resources to help develop cutting-edge innovations.
“Over the past month, we have conducted a number of discussions about how these programs are working and whether there are gaps that need to be addressed in these programs to improve research and health outcomes for patients across the country. We've heard from public health experts: The bill introduced today will help ensure the continuation of these critical programs.”
bold act
“To support better detection, diagnosis, and treatment of Alzheimer’s disease, the bipartisan bill HR 7218, Building the Largest Dementia Infrastructure for Alzheimer’s Disease Reauthorization Act of 2024, or “BOLD Act,” I'm proud of the fact that I'm watering it down.
“The BOLD reauthorization also includes educational resources to help ease the challenges for those caring for loved ones with this vicious disease. This continued investment in caregivers is even more important now that caregivers have more time to spend.
“I thank Congressman Tonko for leading this bill with me, and I encourage my colleagues on the committee to vote YES on this bill.”
Include project
“We are also considering the Deondra Dixon INCLUDE Project Act, led by Chairman Rogers, which will enable current programs at the National Institutes of Health to continue cutting-edge research on Down syndrome. ”
“The INCUDE project continues to foster coordination across the NIH and build research that improves the quality of life for people with Down syndrome and leads to medical knowledge that benefits all patients.”
Eliminate organ transplant discrimination
“To support patients and caregivers, we are enacting legislation, the Charlotte Woodward Organ Transplant Discrimination Act, led by Congresswoman Cammack. It would be prohibited to deny or limit an individual's access to organ transplants solely on the basis of a disability.
“Over a decade ago, Charlotte Woodward received a heart transplant and has dedicated her life's work to breaking down unnecessary and discriminatory barriers for people with disabilities who require organ transplants. Charlotte Thanks to her passionate advocacy, we are taking another step forward to ensure that individuals and their families do not have to go through what too many have faced when seeking this life-saving treatment. It's approaching.
“Other bills being considered today aim to improve access to critical emergency services for children and people living in rural areas.
“Congressman David Joyce’s SIREN Reauthorization Act will continue to provide resources to local emergency medical providers to ensure they can maintain essential services. We are still working on several policy considerations. We are aware of this, but we are confident that we will be able to reach a solution before the program expires on September 30th.
“Next up is the bipartisan Pediatric Emergency Medical Services Reauthorization Act. It is often said that children are more than just “little adults.'' The bill would continue a program aimed at ensuring paramedics have the proper training and equipment to care for children in emergency situations.
“Finally, we are marking up two bills we heard in the fall: the Senior Citizens Access to Critical Medicines Act, sponsored by Congressman Hershberger, and the Kidney Patients Act, sponsored by Mr. Carter.
“The Older Adults Access to Critical Medicines Act will ensure cancer patients continue to receive the care they need in the safest and most convenient way possible. I look forward to moving these two bills out of subcommittee today and addressing additional outstanding issues before this committee.
“I want to thank all of my colleagues who worked hard to pass the legislation before us today and their leadership on these policies.”
